Story
Kendalyn Illu
2025 Patient Champion

Champion photo


Kendalyn, age nine, has “the most tender heart,” according to her mom, and it’s due in part to all she’s been through. Born with complete intestinal failure, Kendalyn relies on total parenteral nutrition (TPN). She has never been able to eat food in the traditional sense, and she faces chronic pancreatitis and lung disease. She typically spends two to three months out of the year at Intermountain Primary Children’s Hospital.

While at the hospital, Kendalyn stays occupied with some of her Child Life therapists providing constant crafts and toys. Since she’s often in a lot of pain but only able to combat it with over-the-counter pain medication, she also works with a caregiver who provides acupuncture and massage therapy. Sometimes she also uses a wheelchair when walking becomes too painful.

Despite her body not working the way it’s supposed to, Kendalyn has done ballet for as long as she can remember. She loves playing with friends and participates in her school’s robotics club. She’s also passionate about educating her classmates about what it means to have medical complexities, enjoying reading the book Super Tubie to her class.

Kendalyn has a close bond with her service dog, Reggie, who acts as an additional alert system for blood sugar and TPN leaks. Reggie goes everywhere with Kendalyn, often dressed in a pink vest, with painted nails and a bow in his hair. With Reggie at her side, Kendalyn continues to be a bubbly, happy-go-lucky kid pursuing what she loves.