Cole is known for his confidence, thoughtfulness toward others, and humor—qualities his mom says shine through in everything he does. These traits are especially remarkable given the challenges he’s faced for most of his young life. He was diagnosed with spina bifida, a birth defect that occurs when the spine and spinal cord do not form properly in utero. This impacted the use of his legs and bladder.

Joann, Cole’s mom, was still pregnant when she received the news that her baby had spina bifida. “The scariest part was the unknown,” she remembers. Thankfully, she had doctors and staff who provided critical information and support throughout her pregnancy and beyond. Joann underwent surgery during her pregnancy, where they were able to repair Cole’s spine, allowing his brain, which was being pulled down, to float back up into its proper place. Six weeks later, Cole arrived! He was born at just thirty-two weeks and spent his first two months in the NICU.

Today, Cole is full of life. He loves telling jokes, doing hilarious Yoda impressions, and laughing—even in the hospital. Despite the many procedures he’s undergone, Cole finds humor to be one of the best forms of medicine. During tough moments, he watches funny videos and appreciates the volunteers who visit, especially those who sing to him or bring in the service dog.

Though Cole navigates daily challenges, he leads a vibrant, active life with the help of his custom wheelchair and other mobility devices. He skis, plays basketball, spends time with friends, and loves a good Café Rio quesadilla. He likes to do what other kids his age do. Joanne adds, “And because of the care we get, he’s able to live that life to the fullest.